Tonko Leads Resolution on Barth Syndrome Awareness Day
April 04, 2025
April 04, 2025
WASHINGTON, April 4 -- Rep. Paul D. Tonko, D-New York, issued the following news release:
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Tonko Leads Resolution on Barth Syndrome Awareness Day
ALBANY, NY -- Ahead of Barth Syndrome Awareness Day (April 5th), Congressman Paul D. Tonko (NY-20) announced his bipartisan resolution to raise awareness about the ultra-rare genetic disorder and ensure individuals living with this condition have access to safe and effective treatments.
Rep. Ton . . .
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Tonko Leads Resolution on Barth Syndrome Awareness Day
ALBANY, NY -- Ahead of Barth Syndrome Awareness Day (April 5th), Congressman Paul D. Tonko (NY-20) announced his bipartisan resolution to raise awareness about the ultra-rare genetic disorder and ensure individuals living with this condition have access to safe and effective treatments.
Rep. Ton . . .