Sunday - September 14, 2025
Tonko Leads Resolution on Barth Syndrome Awareness Day
April 04, 2025
WASHINGTON, April 4 -- Rep. Paul D. Tonko, D-New York, issued the following news release:

* * *

Tonko Leads Resolution on Barth Syndrome Awareness Day

ALBANY, NY -- Ahead of Barth Syndrome Awareness Day (April 5th), Congressman Paul D. Tonko (NY-20) announced his bipartisan resolution to raise awareness about the ultra-rare genetic disorder and ensure individuals living with this condition have access to safe and effective treatments.

Rep. Ton . . .

Targeted News Service Document Request Form

This document is available to you by e-mail if you complete the form below with relevant information. There may be a fee for this article or ongoing service of similar materials. We will be in touch shortly.

Name:
What's your
Affiliation		 Government Newspaper / Media Business
Public Policy Individual / Student Educators
Email:
Phone:
Organization, if any:
State/Country you are in:
Additonal questions
or comments:

Click here for more information about our products

Click here for more information about our products