National Organization for Rare Disorders Launches the Living Rare Study - First to Measure Full Scope of Rare Disease Challenges
October 22, 2024
October 22, 2024
DANBURY, Connecticut, Oct. 22 (TNSres) -- The National Organization for Rare Disorders issued the following news release on Oct. 21, 2024:
WASHINGTON, DC, October 21, 2024 - Today, the National Organization for Rare Disorders (NORD) introduced the Living Rare Study, a groundbreaking multi-year research initiative designed to capture and analyze the experiences of those living with a rare disease. As the first large-scale study of its kind in the United States, it will explore challe . . .
WASHINGTON, DC, October 21, 2024 - Today, the National Organization for Rare Disorders (NORD) introduced the Living Rare Study, a groundbreaking multi-year research initiative designed to capture and analyze the experiences of those living with a rare disease. As the first large-scale study of its kind in the United States, it will explore challe . . .