National Organization for Rare Disorders: New California Law Establishes the Jacqueline Marie Zbur Rare Disease Advisory Council
October 02, 2024
October 02, 2024
DANBURY, Connecticut, Oct. 2 -- The National Organization for Rare Disorders issued the following news release:
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Council will advise and advocate on the needs of California's rare disease community
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SACRAMENTO, CA, SEPTEMBER 30, 2024 -- California Governor Gavin Newsom signed into law AB 2613, legislation that creates the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC).
Named in honor of Assemblymember Rick Zb . . .
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Council will advise and advocate on the needs of California's rare disease community
* * *
SACRAMENTO, CA, SEPTEMBER 30, 2024 -- California Governor Gavin Newsom signed into law AB 2613, legislation that creates the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC).
Named in honor of Assemblymember Rick Zb . . .