NORD and the Galactosemia Foundation Jointly Publish First "Voice of the Patient" Report to Help Inform the FDA and Researchers
June 28, 2023
June 28, 2023
DANBURY, Connecticut, June 28 (TNSrpt) -- The National Organization for Rare Disorders issued the following news release on June 27, 2023:
The Galactosemia Foundation and the National Organization for Rare Disorders (NORD)(R) today announced they have jointly published the galactosemia community's first "Voice of the Patient" report. This report provides a comprehensive overview of patient and caregiver experiences with this rare metabolic disease, which currently has no a . . .
The Galactosemia Foundation and the National Organization for Rare Disorders (NORD)(R) today announced they have jointly published the galactosemia community's first "Voice of the Patient" report. This report provides a comprehensive overview of patient and caregiver experiences with this rare metabolic disease, which currently has no a . . .