National Organization for Rare Disorders Joins With the Krabbe Disease Community to Publish 'Voice of the Patient' Report
March 17, 2021
March 17, 2021
DANBURY, Connecticut, March 17 (TNSRep) -- The National Organization for Rare Disorders issued the following news release:
The National Organization for Rare Disorders (NORD)(R), together with KrabbeConnect, The Legacy of Angels Foundation, Partners for Krabbe Research, Hunter's Hope and with additional support from Gain Therapeutics, Magneta Therapeutics, PassageBio and Neurogene, has published the "Voice of the Patient" report sharing the stories of patients and families . . .
The National Organization for Rare Disorders (NORD)(R), together with KrabbeConnect, The Legacy of Angels Foundation, Partners for Krabbe Research, Hunter's Hope and with additional support from Gain Therapeutics, Magneta Therapeutics, PassageBio and Neurogene, has published the "Voice of the Patient" report sharing the stories of patients and families . . .