National Organization for Rare Disorders Launches Natural History Study for Undiagnosed Rare Diseases
February 29, 2020
February 29, 2020
DANBURY, Connecticut, Feb. 29 -- The National Organization for Rare Disorders issued the following news release:
The National Organization for Rare Disorders (NORD)(R), the leading independent nonprofit organization representing over 25 million Americans with rare diseases, launched the Undiagnosed Rare Disease Registry, a new study to collect de-identified information about hard-to-solve medical cases that will enable researchers to perform analyses at a scale previously not possib . . .
The National Organization for Rare Disorders (NORD)(R), the leading independent nonprofit organization representing over 25 million Americans with rare diseases, launched the Undiagnosed Rare Disease Registry, a new study to collect de-identified information about hard-to-solve medical cases that will enable researchers to perform analyses at a scale previously not possib . . .