CF Foundation Adapts Registry Reporting to New Race-Neutral Standards
April 03, 2024
April 03, 2024
BETHESDA, Maryland, April 3 -- Cystic Fibrosis Foundation issued the following news release:
Starting this month, the Cystic Fibrosis Foundation is changing the way it reports the lung function of people with cystic fibrosis in the CF Foundation Patient Registry. Historically, the lung function of a person with cystic fibrosis has been compared to average lung function for a healthy person with similar characteristics, including biological sex, age, height, and race. As of April 19, . . .
Starting this month, the Cystic Fibrosis Foundation is changing the way it reports the lung function of people with cystic fibrosis in the CF Foundation Patient Registry. Historically, the lung function of a person with cystic fibrosis has been compared to average lung function for a healthy person with similar characteristics, including biological sex, age, height, and race. As of April 19, . . .